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Information and Support: Epilepsy

If you, or someone you know, have been affected by epilepsy, the following organisations may be able to help.

Epilepsy Action

Epilepsy Action can provide information and advice on all aspects of epilepsy (including misdiagnosis) to support anyone affected by epilepsy.

Phone: 0808 800 5050

Visit the Epilepsy Action website

Epilepsy Society

Epilepsy Society offers information and support to everyone affected by epilepsy, and delivers medical care and support.

Phone: 01494 601400

Visit the Epilepsy Society website

Epilepsy Scotland

Epilepsy Scotland provides a helpline and information service to anyone affected by epilepsy and their families.

Phone 0808 800 2200

Visit the Epilepsy Scotland website

Epilepsy Wales

Epilepsy Wales helps to improve the lives of people with epilepsy, their families and carers.

Phone: 0800 228 9016

Visit the Epilepsy Wales website

SUDEP Action

SUDEP Action provides information and bereavement support to families affected by Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy related deaths.

Phone on 01235 772 852

Visit the SUDEP Action website

Other sources of information on Epilepsy

These organisations may refer to other support services that the BBC has not necessarily verified.

Young Epilepsy

Young Epilepsy is a national charity supporting children and young people aged 25 and under living in the UK with epilepsy.

Visit the Young Epilepsy website